International Epidermolysis Bullosa Week

From October 25 to October 31, 2021, the International Epidermolysis Bullosa Week is being held all over the world, during which the most important problems of patients with the butterfly syndrome will be raised. In our Republic, this initiative was taken by Kazakhstan Association of Dermatovenereologists, Dermatocosmetologists, with the participation of the Kóbelek balalar Charitable Foundation. Five days of seminars will be held for dermatologists/pediatrists and GPs, regional coordinators for orphan diseases and other interested participants. There will be an online question-answer section to solve daily pressing problems with parents of young patients and adult "butterflies". If you also have questions about epidermolysis bullosa, join us!